More On Being Alone...The Parent Dilemma

The Mother passed about a year and a half ago. I don't know if I ever thought she would go first and I didn't think she would go at the age of 80...just seemed too soon. However, as I told many people, she really hadn't been herself for a couple of years, so she 'left' some time before her death. It really hurt that we weren't able to get back to being as close as I would have liked after our estrangement, but, life goes on. Her and The Father had just celebrated their 64th anniversary.

A couple of weeks ago, I found out that The Father was having some medical issues. These 'spells' he was having were similar to what he was experiencing before it was determined that he needed a pacemaker, which he had done a few months back. Things seemed to be going well and then this...

He has been through a battery of tests and emergency room visits and appointments with his primary care doctor, all with the conclusion of "we can't find anything wrong." Yet, he still insists 'something' isn't right. The Oldest Daughter and one of my nieces said that they think he has 'given up' and has lost his zest for life. Very possible.

There are two things that could be happening here and I completely understand both. First, I think it is next to impossible to get the medical community to understand what you are going through...especially as one ages. I know that I can't explain my aches and pains in a way that doctors have been taught to understand. The terminology, for one, is so different between 'medical-ese' and 'normal' language, that it is next to impossible for one group to understand the other. While The Father is far from stupid, he still doesn't have the command of the language that someone else might have. He doesn't use the internet, at all, and really doesn't venture outside of his comfort zone when it comes to reading or what he watches on TV, so he probably isn't communicating in a great fashion. But even though I think I might have a better command of the language than he does, I find that I can't make myself understood either. And the way I explain this is here:  Think of the 'pain chart' with the emojis that you see in a medical setting or the pain scale of 1-10 in how much pain you're in. Do either one of these really represent what you are going through? And what if the pain you are feeling is intermittent? And what if what you are feeling is in no way a 'textbook' response to what a doctor might expect? (I don't have textbook symptoms with a lot of my medical issues, so what do they do with me?) It is very difficult to talk to some doctors and until they are given a lot of instruction about dealing with older people, I don't know that things will improve.

The second thing that could be going on is that he possibly is 'giving up.' And I so understand this. Feeling as if there really is nothing more to live for, isn't a death wish...it isn't a suicidal tendency. When your soulmate...The Father's of 64 years, mine of 45 years...is gone, especially when you are retired and 'left alone,' there really feels as if there is nothing left for you. You can keep yourself busy and do things, you can be with people and be happy with them, but it isn't the same. You have thought of yourself as 'we' for the majority of your life and now it is a non-existent thing. You really wonder what your worth is and if you even want to put forth effort to find out if there is any worth left in your life. Everyone else's life continues as normal for them (which it absolutely SHOULD) but your life is irreparably altered. And this is something NO ONE can understand until they have gone through it themselves. So, if he is feeling as if he wants to give up, I understand.

Now, for a solution to The Father's issues...  I don't know what to say about the medical thing. He is very opposed to anyone talking to a doctor on his behalf...and I'm not sure it would do much good anyway...especially if it is a communication issue. He doesn't feel as if it is anyone else's business what goes on at the doctor's office and this is something that we can't do anything about. (If you ever heard that Finn's are stubborn, then you KNOW what dealing with The Father is like.) So, until something is measurably wrong with him, he will continue to 'not feel well.' As for the being alone thing...if he could be talked into going into a senior citizen apartment complex/facility, I think he would have many, many happy years ahead of him. The activities and people would keep him busy and he would have someone around at all times so that he wouldn't/couldn't wallow in any self pity. BUT, this would have to be suggested in a way that he thought it was his own idea..not something that is an easy thing to do. So, until The Family can come up with a solution, this is life as we know it...at least, for now.


***Before anyone gets worried, I am NOT suicidal or wanting to die! It hasn't even been a year for me, so I still am trying to figure out what the rest of my life is going to look like. I still grieve and I still wallow...it is a process, one I am dealing with. One, three, or five years from now, I may look back at this post and wonder how I could have felt this way...one never knows. I live one day at a time for now, and that is more than I could hope for.

Retired

Technically, I have been retired for almost three years. But, being a stay-at-home, retirement wasn't/isn't actually a 'thing' for me. The only thing different after retirement was I started getting a paycheck. That is nice, to finally get paid for the work that I do...now that I don't do any work. 😁

I remember telling The Husband that retirement for me wasn't ANYTHING like retirement for him. He left his job and never had to go back. I, on the other hand, stayed and continued my job, I just started to get paid for doing it! For those who always went out into the working world, this is a concept that is impossible to grasp...really.

After retiring...actually, as soon as The Husband retired...I began to 'take it easy.' I didn't cook meals as often as I once did, didn't clean the house as often, either. He did a lot of the grocery shopping and began to help with the cleaning. All of this WASN'T because I decided to quit doing things, though. It began to be more difficult for me to do physical things because of my PsA, so it was a wonderful thing that he could pick up the slack.

I have come to realize how much I relied on the help my husband gave me, both in recent years and in the past. I now have to drive myself most of the time.* If I can't/won't drive to a place, I have to wait until Friday when The Youngest has her day off. I tend to keep more of my pantry items in the kitchen cupboards than I like, just so I don't have to go down in the basement. And 'cleaning DAY' has turned into multiple days. All part of getting older, but I was just getting used to the 'new normal' when The Husband died. ANOTHER thing I have to get used to!

But, back to retirement. We retired early so we could live life. A good sentiment, but it didn't work out that way. The first year took up the building of the house and getting settled. The second year continued with the house, but now it took on the added aspect of taking care of The Husband's health. The third and fourth years were all about dialysis and trips to the hospital to keep his dialysis access points accessible. NOT what we had in mind when he retired.

Early retirement had never been part of the plan for us. But, a couple of things changed. First, the power plant where The Husband worked, became a part of the 'get rid of all coal fired plants' agenda. Every few weeks, there was more news as to what and when things were going to change/happen. It got to where he didn't know how much longer he actually was going to HAVE a job, so it was very stressful...not something you want to face on a daily basis. And then the second reason turned out to be quite ironic...

The Husband's niece, who was only two years younger than us, passed away. That was the day he decided to turn in his retirement papers. He wanted to be able to enjoy retirement and not have to face the health issues she did. A good idea, but it turned out that he didn't have the chance to fully enjoy his retirement because of HIS health issues. I don't like to do the 'Why?' thing, but it does cross my mind sometimes. I don't understand why he couldn't have had a few years for travel and pure enjoyment, but it wasn't to be. And I always will be sad that he couldn't have that small thing before he passed.

I face my 'golden years' alone...another thing that I never thought was going to happen. Retirement...not what I was expecting.

*I never enjoyed driving, even when I was younger. It was a necessity and that was it. I pretty much quit driving when The Husband retired...he loved to drive and would bring me wherever I needed to go and I appreciated it so much! I am re-learning how to drive around our town with all of the changes, but I'm not too sure I will fight it when I finally have to quit. 😊

Fatigue

When I was diagnosed with psoriatic arthritis, it answered a lot of questions for me. Along with the psoriasis, the comorbidities certainly follow along with many of my health issues. While PsA shares a lot of the same symptoms as other forms of arthritis, one thing is more prevalent with PsA, and that's fatigue. Which I have...

I've suffered from different amounts of fatigue practically my entire life. My sleep habits have always been erratic...I never wanted to go to sleep and once I was sleeping, I never wanted to get up. This didn't work well when I was in school, or after having kids. So, fatigue was my constant companion.

It seems as if I 'do' resolutions several times a year. I vow to myself to get on the 'right' track and get better sleep/better nutrition/better exercise, etc. Once again, a few weeks ago I made my vow. While my nutrition didn't get THAT much better, I actually started to be a lot more active. I got my 'active minutes' done and got my 'daily steps' in for a couple of weeks. (Fitbit users will understand...😀) It felt good to have that accomplishment under my belt, but I found out that my knee joint wasn't too happy with me pushing things too far and too fast. It got to the point where I couldn't 'push through' the pain and I had to back things down. DAMN!!! Even my scheduled Cosentyx injection and the CBD oil weren't making things better, so I had to slow down the activity a lot. And I think I regressed...

For the past two weeks I have slowed down to a crawl, in terms of my activities. I do what I have to do, go where I have to go, and move from one room to the next, and that's about it. And the fatigue has set in with a vengeance. This past week, I have slept almost as much as I have been awake...and I still don't have trouble falling asleep when I get comfortable. UGH!

So, what has all of this done for me? Well, for one thing, most of the time I feel as if I'm in a sleep fog...my brain feels heavy, my eyes burn and don't 'feel right,' and my body is achier than usual. Fun times. I'm thinking I'm having a flare and this episode of extreme fatigue will pass, as has happened at other times. I have to believe.

Having health issues is one thing when you have someone with you at all times, but when you are alone, it can be very scary. I'm doing okay here by myself, but only because the house is on one level. I go into the basement when I need to and no more often than that. I had so many plans for the basement, but at this point, they are being put on hold. I wanted to put a sauna down there and set up a craft/sewing room and set up an exercise room, but that isn't happening any time soon. It's enough that my long-term pantry is down there and that the overflow from my kitchen cabinets is there...that is why I have to go down those steps as often as I do. But, I don't go down there voluntarily, as often I thought I was going to. And as the saying goes, "Life is what happens while you're busy making other plans." And life goes on...

To Sleep, Perchance To Dream

The day after I turned forty, my body fell apart.  I gained 30 pounds overnight, my joints began to ache, and I started to make 'old person noises' whenever I got up from a sitting position.  And every 10 years since, it has gotten worse.  One of the worse problems I have faced with my getting older is the inability to get a good night's sleep.  Yes, I wake up to head to the bathroom several times at night, but it is the trouble trying to find a comfortable position in bed that is the most annoying.  And this is where I segue into this post...

When we were getting ready to move into this house, one of the 'must haves' that I insisted on was a new bed...a KING-SIZED bed.  We never had a room big enough to have a king-sized bed before and I couldn't think of anything more luxurious for our new home.  So, we went shopping.

I haven't slept well for years, so about 5 years ago we went shopping for a new mattress and settled on an expensive model.  I figured you get what you pay for and had always heard that a firmer mattress was what a person should sleep on.  We paid the price and had the thing delivered...and hated pretty much every minute we slept on the thing.  It got to the point where The Husband was sleeping on the sofa and I was in the recliner as much as in bed.  So, when we went to buy our new mattress, we decided to get the cheapest, well-made one we could find.  And then we met Frank, a man who had been in the mattress business for over 30 years.  He began making mattresses, then he supervised mattresses being made, and then he moved into selling mattresses in his senior years.  He talked a good talk and before we knew it, we were on the 'computerized mattress' being 'measured' for the best match for us.  He led us to different beds to 'try out' and left us there.  Both of us were very comfortable and after trying a few more mattresses, decided on the first one we tried.  The mattress cost about as much as we paid for our first car. =8-0

Our bed was delivered shortly after we moved into the house.  And then came the 'break-in period.'  We were told that it would take close to four weeks for our bodies to get used to the new, improved, and perfect-for-our-bodies mattress.  They certainly weren't wrong about getting used to the new bed.  Some mornings I got out of bed feeling as if I was beat with a baseball bat!  But things improved...to a certain extent.  My old body is turning against me once again and it isn't letting me get good sleep.  The conclusion I have come up with is that I haven't found the right pillow.  So, I will be shopping, again.

I pretty much think that a good night's sleep is something I will never have again.  While getting older has its perks*, there are many not so good things.  I try to focus on the good and not the bad.  Why not?  Just think of the alternative.


*Perks of getting older:  no periods, no teenagers, retirement, no schedules, being an 'elder' and being able to speak your own mind...are just a few of the good things!  :)