When I was diagnosed with psoriatic arthritis, it answered a lot of questions for me. Along with the psoriasis, the comorbidities certainly follow along with many of my health issues. While PsA shares a lot of the same symptoms as other forms of arthritis, one thing is more prevalent with PsA, and that's fatigue. Which I have...
I've suffered from different amounts of fatigue practically my entire life. My sleep habits have always been erratic...I never wanted to go to sleep and once I was sleeping, I never wanted to get up. This didn't work well when I was in school, or after having kids. So, fatigue was my constant companion.
It seems as if I 'do' resolutions several times a year. I vow to myself to get on the 'right' track and get better sleep/better nutrition/better exercise, etc. Once again, a few weeks ago I made my vow. While my nutrition didn't get THAT much better, I actually started to be a lot more active. I got my 'active minutes' done and got my 'daily steps' in for a couple of weeks. (Fitbit users will understand...😀) It felt good to have that accomplishment under my belt, but I found out that my knee joint wasn't too happy with me pushing things too far and too fast. It got to the point where I couldn't 'push through' the pain and I had to back things down. DAMN!!! Even my scheduled Cosentyx injection and the CBD oil weren't making things better, so I had to slow down the activity a lot. And I think I regressed...
For the past two weeks I have slowed down to a crawl, in terms of my activities. I do what I have to do, go where I have to go, and move from one room to the next, and that's about it. And the fatigue has set in with a vengeance. This past week, I have slept almost as much as I have been awake...and I still don't have trouble falling asleep when I get comfortable. UGH!
So, what has all of this done for me? Well, for one thing, most of the time I feel as if I'm in a sleep fog...my brain feels heavy, my eyes burn and don't 'feel right,' and my body is achier than usual. Fun times. I'm thinking I'm having a flare and this episode of extreme fatigue will pass, as has happened at other times. I have to believe.
Having health issues is one thing when you have someone with you at all times, but when you are alone, it can be very scary. I'm doing okay here by myself, but only because the house is on one level. I go into the basement when I need to and no more often than that. I had so many plans for the basement, but at this point, they are being put on hold. I wanted to put a sauna down there and set up a craft/sewing room and set up an exercise room, but that isn't happening any time soon. It's enough that my long-term pantry is down there and that the overflow from my kitchen cabinets is there...that is why I have to go down those steps as often as I do. But, I don't go down there voluntarily, as often I thought I was going to. And as the saying goes, "Life is what happens while you're busy making other plans." And life goes on...
I wasn't aware of psoriatic arthritis -- or that you have it. You have had a LOT on your plate the past few years, and yet you maintain a great sense of humor. I'm sure you have moments when you don't find life all that amusing, but I'm rooting for you. After all, this blog inspired me to write!
ReplyDeleteThank you for that! Yes, my PsA wasn't diagnosed until after the house was built and I'm thankful every day that we built a house with old age/health issues in mind!
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